Oh my goodness, these days have been trying my patience. I have had many new adventures since my last blog post and let me tell you, I now understand how people die waiting for the medical system to make room for them. Short recap, this all started on April 25th with uncontrollable barfing which landed me in the Hays ER. In the days since, I have been to the Hays ER a total of 5 times; the Salina ER 1 time (with a 3 day stay at the hospital); and the Wesley ER in Derby 1 time. So far, I know the following things: I do not have an ulcer, a bowel obstruction, or any kinking of the bowel; I do have a small hiatal hernia (which is apparently nothing to worry about), a 5.9 cm cyst which may or may not be on my ovary, and a cocoon abdomen (translation: so many adhesions everyone is afraid to operate on me).
At this juncture, I have lost 12 pounds due to the fact that my GI system can't remember what to do with food (what is this? I stab you with this?). I am on an extremely bland diet and, knock on wood, I haven't had any Linda Blair repeats for over a week. Unfortunately, my intestines still try to kill me. For those of you who squeam easily, please skip this next sentence or so. I rarely experience pain of this magnitude (and I experience a lot of pain so that is saying something), but most times when I eat, especially first thing in the morning, I feel like my insides are trying to move a bowling ball filled with shrapnel and glass. I get fiery hot and start sweating like it's an aerobic work out. Then, the pain passes through me like a drunken mule on a rampage (my greatest fear is that I will pass out and fall off the toilet and someone will find me wedged between the toilet and the wall soaked in sweat and lord knows what else). Eventually it passes and I go lay back down to sleep off the horror.
I also have intermittent pain in my back and abdomen (presumably from the cyst). I've run out of the good drugs and have down graded to the ok stuff. For the moment (cross your fingers) I am taking less of it. My days consist of Pinterest, Facebook, a matching game on my phone, and naps - so many naps.
The specialist originally scheduled me for May 22, but after a bout of hysterical sobbing on my part, the nurse put me on a wait list and I got in round about May 10. I called the office to make sure they had all my records, but when I got there, they didn't. They said they would have to consult some people and get back to me (it could take up to 2 weeks). I had more issues, the specialist didn't know what to do, and now I have been referred to a surgical group. They are hopefully getting me in next week some time, but I still haven't had a confirmation about the time of the appointment. I won't believe it until I get that call. Also, this is a consultation and may or may not provide me any answers/solutions. Even if they do decide to operate, it could be several weeks before they get me in and (I'm trying not to think about this now) any operation they do will be much more risky than it is for your average bear. There is a lot that could go wrong.
Now, I sit and wait and hope that they give me some sort of answer that tells me whether I have to quit the awesome job I just started. Man, this is lame. I think I'm going to go take another nap. I can't wait to be a real girl again. Oh yeah, as a final note. I've had to cancel my long anticipated Oregon Trail trip with my besties as I am falling apart and now have a crap ton of medical expenses to pay. Sigh. It is what it is. This too shall pass.
Creating my own sunshine 🌞